I’d first learned about Traumatic Brain Injuries while caring for my mother after her 2006 fall. I was compassionate, I wanted to understand, and I did my best to be there for her in a way that felt good to her and to me. I didn’t know what I didn’t know. I didn’t know the right questions to ask. I only knew the questions I already had. I didn’t even know she’d had a TBI; her doctors never used that term with me. I learned what she had while researching why she’d suddenly become so different. My mother wasn’t able to communicate how it was to be her in a way I could consistently comprehend. I did better some days than others. It was all I knew how to do.
It took having my own TBI in 2012, 13 months after her death, to truly understand what it was like to be her, post fall and pre dementia. Strokes qualify as TBI’s. Those of us with TBI’s have two full time jobs: committing to our own healing while finding a way to teach others who don’t understand how it is to be us what we need. Neither job is easy; there are many days when it’s much easier to rehab our own brains than it is to enlighten others who look at us, think we’re fine, and wonder why we make so many mistakes and can’t yet do what we used to do. Please read and share the following to give those of us with TBI’s more time to devote to our own healing. – Sheryl Lynn
Today is the beginning of brain injury awareness month!!!!
A Poem for TBI Awareness 2014
“What is that?” they say.
It’s something that I live with
Each and every day.
“T” is for traumatic
An accident, injury or fall.
The way that it effects each brain
Is different for us all.
“B” is for the brain
The computer in our head
That guides each step, each thought, each move,
And everything we’ve said.
“I” is for the injury
No one wishes it to come,
For when it does your life is changed,
Where will our strength come from?
The caregivers go through so much
In the watch and wait and see.
They each have hopes and doubts and tears,
Survival is the key.
The survivors come so far each day
With progress, there’s no doubt,
But sometimes it’s slow and frustrating
And hard to figure out.
All TBI’s are so different;
Our caregivers are so strong.
The survivors are so thankful
For those who’ve come along.
Our PT’s, OT’s, counselors,
Vision therapists and Speech
Push us towards our goals each day
So every one we’ll reach.
Rewiring the brain they say
To relearn the things we’ve lost
Striving, praying, working hard
No matter what the cost.
Our injuries can be invisible
Or sometimes they are not,
But no matter what you see in me,
TBI changes a lot.
This battle is so difficult
No one wants to fight alone.
It’s time to stick together,
For our journey’s never done.
Wear your green to show this March
That you are very aware
That TBI can effect anyone,
It isn’t often fair.
So help me spread the word
So awareness will increase,
And TBI will be well known
And ignorance will cease.
Wendy Harron 2/28/2014 thinking about TBI Awareness
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